What is Port CF?
Port CF is a New Zealand data registry owned by CFNZ. It uses anonymous patient data to analyse trends in CF care. These reports can be compared to CF registries in the UK and Australia to help determine how NZ compares to other countries. They also provide information to help CFNZ lobby for new treatments. Download.
What is the CF Registry?
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry.
How do people cope with cystic fibrosis?
Inform yourself: Find out as much as you can about CF to avoid feeling overwhelmed. Maintain your social life: Make time to see friends and family to avoid feeling isolated and alone. Maintain a healthy lifestyle: Eat well and exercise regularly and make sure you get 30 minutes of fresh air every day. Sleep!
How do you cite the Cystic Fibrosis Foundation?
Cite This Item
- Chicago citation style: Cystic Fibrosis Foundation. Cystic Fibrosis Foundation . United States, 2002.
- APA citation style: Cystic Fibrosis Foundation. (2002) Cystic Fibrosis Foundation . United States.
- MLA citation style: Cystic Fibrosis Foundation. Cystic Fibrosis Foundation . United States, 2002.
How common is cystic fibrosis in the world?
According to the Cystic Fibrosis Foundation Patient Registry, in the United States: More than 30,000 people are living with cystic fibrosis (more than 70,000 worldwide). Approximately 1,000 new cases of CF are diagnosed each year.
How is cystic fibrosis diagnosed?
To diagnose cystic fibrosis, doctors usually perform blood tests. They may test sweat for high salt content, which can indicate cystic fibrosis. If the diagnosis is confirmed, doctors may evaluate the condition with a chest x-ray, chest or abdominal CT or MRI, abdominal ultrasound, or sinus CT.
What is the life expectancy for cystic fibrosis?
Today, the average life span for people with CF who live to adulthood is about 44 years. Death is most often caused by lung complications.
What limitations does a person with cystic fibrosis have?
What kind of limitations does someone with CF have? People with CF can live very full, normal lives. There are no limitations to their exercise, diet, or activities. However, due to the different lung infections that they can get, they should not meet or talk with other patients with CF in-person.
Who owns the Cystic Fibrosis Foundation?
Cystic Fibrosis Foundation
| Founded | December 16, 1955 |
|---|---|
| President, Chief Executive Officer | Michael P. Boyle, M.D. |
| Chair, Adult Advisory Council | KC White |
| Subsidiaries | Cystic Fibrosis Patient Assistance Foundation, Cystic Fibrosis Foundation Therapeutics |
| Revenue (2016) | $192,528,975 |
Is the Cystic Fibrosis Foundation reliable?
— The Cystic Fibrosis Foundation announced today it has received a coveted 4-star rating for sound fiscal management from Charity Navigator, the largest charity evaluator in the United States. The Foundation earned four out of four possible stars for achieving excellence in fiscal responsibility.
What famous person has cystic fibrosis?
List of people diagnosed with cystic fibrosis
| Name | Life |
|---|---|
| Christopher Davies | (1978—) |
| Alexandra Deford | (1971–1980) |
| Gunnar Esiason | (1991—) |
| Bob Flanagan | (1952–1996) |
How old is the oldest living person with cystic fibrosis?
A 76-year-old woman has become the oldest person to be diagnosed with cystic fibrosis – a disease which can claim the lives of people in their mid- to late-thirties.