Is Klippel-Trenaunay syndrome curable?
There is no cure for Klippel-Trenaunay syndrome (KTS). Treatment aims to improve your child’s mobility, prevent infections or complications and manage pain and other symptoms.
Is Klippel-Trenaunay syndrome a disability?
If you or your dependent(s) are diagnosed with Klippel-Trenaunay Syndrome and experience any of these symptoms, you may be eligible for disability benefits from the U.S. Social Security Administration.
How common is KTS?
General Discussion. Klippel-Trenaunay syndrome (KTS) is a rare disorder that is present at birth (congenital) and is characterized by a triad of cutaneous capillary malformation (“port-wine stain”), lymphatic anomalies, and abnormal veins in association with variable overgrowth of soft tissue and bone.
Is there a cure for KTS?
Although there’s no cure for KTS , your doctor can help you manage symptoms and prevent complications.
Does Klippel-Trenaunay syndrome get worse with age?
In people with Klippel-Trenaunay syndrome, the port-wine stain usually covers part of one limb. The affected area may become lighter or darker with age.
Can people with KTS get pregnant?
Patients with KTS can be pregnant and have healthy babies safely with regularly monitor and reasonable treatment during pregnancy. A careful follow-up and guidance are necessary.
Does Klippel-Trenaunay Syndrome get worse with age?
How many cases of Klippel-Trenaunay Syndrome are there?
Frequency. Klippel-Trenaunay syndrome is estimated to affect at least 1 in 100,000 people worldwide.
Are KTS painful?
Symptoms and severity of KTS vary for each patient. Symptoms can include bleeding from the affected limb, a skin infection, blood in the urine, or rectal/vaginal bleeding. You could experience pain in the limb, blood clots, anemia and seizures. Seek treatment to alleviate pain and symptoms as necessary.
Is Klippel Trenaunay Syndrome painful?
The abnormal growth can cause pain, a feeling of heaviness, and reduced movement in the affected area. If the overgrowth causes one leg to be longer than the other, it can also lead to problems with walking. Malformations of veins are the third major feature of Klippel-Trenaunay syndrome.
Does KTA hurt?